Health workforce capacity building for the prevention & control of B Thalassemia in India with Project ECHO
The project aims to expand capacity of healthcare workers across India for the prevention & control of beta thalassemia and other hemoglobinopathies.
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- Development of a multi-module curriculum on Thalassemia to include thematic areas like prevention, carrier screening, diagnosis, counseling, genetic counseling, and treatment along with the care.
- Establish a National Thalassemia Hub in Delhi- NCR and three knowledge centers in partnership with state NHMs to design and implement the program.
- Establish a Thalassemia knowledge network of Centers of Excellence, National Level Associations, Scientists, and Experts.
- Launch of teleECHO programs Capacity enhancement for a nationwide cohort of over 350 healthcare providers, including primary healthcare providers, medical officers, nurses, and allied health workers.
- Conduct events including Immersion, mid-term review, and dissemination to share the outputs/ impacts of the project targeted at a wide audience, including policymakers, researchers, scientists, thalassemia networks, and other in-country stakeholders like medical practitioners, etc.
- ECHO India will forge new relationships and leverage existing partnerships with national and state governments and with national and state-level hospitals and research institutions to address the nation’s growing thalassemia and other hemoglobinopathies burden across the prevention, screening, treatment continuum, better psychosocial support for affected individuals and their caregivers, and palliative care.
The project’s goal is to launch a national thalassemia hub based in Delhi, India, to build workforce capacity to provide best-practice care to patients with hemoglobin disorders.
Results and milestones
Launch of National Thalassemia hub in Delhi NCR and identification of 100 healthcare providers to be trained, by October 2023.
Training of at least 350 healthcare providers, launch of Educational webinar series
and completion of Mid-term review of the project, by October 2024,.
- South-East Asia
- Non-communicable diseases
Project ECHO (Extension for Community Healthcare Outcomes)
- Other NCDs
- Blood disorders