Objectives

• Development of a multi-module curriculum on Thalassemia to include thematic areas like prevention, carrier screening, diagnosis, counseling, genetic counseling, and treatment along with the care.
• Establish a National Thalassemia Hub in Delhi- NCR and three knowledge centers in partnership with state NHMs to design and implement the program.
• Establish a Thalassemia knowledge network of Centers of Excellence, National Level Associations, Scientists, and Experts.
• Launch of teleECHO programs Capacity enhancement for a nationwide cohort of over 350 healthcare providers, including primary healthcare providers, medical officers, nurses, and allied health workers.
• Conduct events including Immersion, mid-term review, and dissemination to share the outputs/ impacts of the project targeted at a wide audience, including policymakers, researchers, scientists, thalassemia networks, and other in-country stakeholders like medical practitioners, etc.
• ECHO India will forge new relationships and leverage existing partnerships with national and state governments and with national and state-level hospitals and research institutions to address the nation’s growing thalassemia and other hemoglobinopathies burden across the prevention, screening, treatment continuum, better psychosocial support for affected individuals and their caregivers, and palliative care.